I borrowed the book How Doctors Think, by Jerome Groopman, MD from the local library. It reveals an amazing view of what influences a doctor's thought processes, and what reasoning a doctor may use when putting you into a pigeonhole of care -- or instead, actually seeing and speaking with you as a living being..... Eureka!
I recenty learned there are apparently online "health record vaults" where health records can (supposedly)be shared with insurers or various doctors you might have. Not that you actually would be able to convince anyone to look into it, and it looks like it might be a fulltime job just to get the info up there. And by then I'll be 90.... or not. Sigh.